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Friday, July 14, 2006

Get over it

There has been a lot of news lately about premature births. From a Newsweek article, the average cost of a preemie is $51,000. Premature births have risen 30% and no one seems to know the cause or what to do. Bed rest does not appear to lower the rate of prematurity.

I’ve been in this heartbreaking situation. With Interuterine Growth Restriction, there was no known cause, and nothing they could do. Some doctors try using Viagra and aspirin to increase blood flow, but there are no studies on this. I was placed on bed rest. If I were to guess how to help this problem, I would suggest that scientists figure out a way to either stop placental degradation, enhance what placental function exists, or how to restart a failing placenta. As IUGR is fairly rare, there is not a lot of money to be made off of this research, so no real motivation for the drug companies to do anything about it.

I’d also like to add, that there was NOTHING I did to cause this, and nothing I could have done to prevent it. I was intensively monitored, received the steroid shots for her lungs, hung out on bed rest for months, and basically did everything I could to have a healthy pregnancy.

My sister was joking that she was going to jump over a cement pole in a parking lot. I told her go ahead, but if she breaks her pelvis, I’m not visiting her in the hospital. She would be at the same hospital as Sydney was. I don’t want to go back there for a long time. After basically living there for 6 weeks, I don’t ever want to go there again. I mentioned this to my sister, and she told me to get over it. Sydney is home, why should I dread that hospital?

Thing is, I can’t just “get over it”. I went through a life-altering event there. My life will never be the same. I went through an entire range of emotions there. My world was turned upside down there. Some of the lowest of the lows and the highest of the highs occurred there. My caesarian scar is not the only scar I carry from this experience. I am scared emotionally, physically, and mentally. Honestly, my caesarian scar was one of the easiest ones to heal.

I bear the scar of seeing my baby six hours after she was born, hooked up to tubes. I bear the scar of watching her over stimulate from my touch. I bear the scar of worrying if she will eat. I bear the scar of those 5 seconds with no crying. I bear the scar of watching her have an IV put in and a blood transfusion. I bear the scar of having to start pumping rather than breast-feeding. I bear the scar that comes when one leave their baby in the hospital. I bear the scar of being told I cannot see or hold my baby. I bear the scar of having her born early because my body failed at its most primal level.

My marriage bears these scars as well. We had some very emotional fights while Sydney was in the NICU. Our first child was born small, sick, and vulnerable. We had disagreements over her care, medical staff, and how to proceed. My husband has scars of his own. He watched me be cut open. He watched as I vomited for hours. He watched as I cried when he and I removed the bandage. He held my hands as they put the spinal in, and I admitted to him I was terrified. He had to be strong when I was weak.

I think that I will get over Sydney’s prematurity as easily as it is to “get over” the death of a loved one. For a loved one did die, that loved one being the longed for healthy fat baby. I love Sydney, but I don’t think anyone dreams of having a premature baby.

Anyway, these are my musings due to the news coverage of prematurity.

4 comments:

Faith said...

Wendy, in my own way, I totally understand, just from a different perspective/situation. I will NEVER go to this one particular hospital again, b/c I had to go visit my best friend there when she gave birth with the child she got pregnant with just before I lost my twins witht he failed IVF. There are other places I will never go again, because it's painful. The wounds heal, but the scars are there. No one has the right to tell you to "get over" something that completely altered your life. I'm just so grateful that Sydney is home and growing, and that Vince will be home soon, and your family can begin to grow together stronger, healthier, and happier than ever. ((hugs)) Faith

WendyLou said...

Thanks Faith for your thoughts.

I think we all have places we avoid, because of the pain attached. For a while, I refused to use a particular on ramp, as that was where my grandpa was killed in a car accident. Mine just happens to be a local hospital. I know I'll end up back there, as the other hospital in the area which my insurance goes to is complete and utter crap. I just don't want to go back there anytime soon.

Sometimes I feel the scars are healing. Other times, I feel that the scab was just ripped off, and the wound is raw.

My sister really has not been through a deep, great loss in her life. She was very small when my uncle killed himself and when our grandpa died.

However, nothing has been as painful as the moments when I though I was having a miscarraige, the negative pregnancy tests, the concerning ultrasound, and the bad parts of the NICU experience.

I think that now that the NICU experience is over, I can muse more on it in a way to work out my feelings. There were times while she was there that I COULD not write, because I would just cry.

Kristin, Rod, and Victoria said...

Wendy, your writing is beautiful. You have a way to put into words so much of what I think about on a daily basis. V's been home from the NICU since February, and still the non-physical scars have not all healed. Please know you're not alone in feeling this way, and it's perfectly normal. We actually just took V back to our NICU for a visit, to show the staff how great she's doing, and to thank them all personally for all they did. There was a point though, where I felt that same apprehension as I walked through the doors, bringing back the memory of not knowing what to expect with each visit. I also felt so guilty that we were there, smiling and enjoying our beautiful daughter, when all the other parents in there were still dealing with the heartache. I guess all we can do is be conscious and cautious, considerate of others' feelings, because we have BTDT.

WendyLou said...

I actually have to go to that hospital on Saturday, to pick up my sister who works there.

I'm dreading it. I would like to go see the nurses and say hi, but I just am scared, like something will go wrong, and she will have to stay. Kris, I understand the feelings of anxiety. It was very hard to not RUN out of the hospital when we were able to leave with her.

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